by Hannah Schmalstich
Thursday, 30th of January 2025 – ten days after the second presidential inauguration of Donald Trump. Angela Rasmussen gets a call late in the evening from a reporter, asking if she had heard the rumors that the CDC website was going to be deleted.
Rasmussen, a virologist from the University of Saskatchewan, was alarmed by the news. The website for the Centres for Disease Control and Prevention (CDC) in the United States serves as a central hub for medical guidance, outbreak and disease tracking, and public health research for medical professionals and researchers around the world. For instance, an urgent care nurse may consult the website when considering care options (particularly in complicated cases). Rural areas, who do not have their own health departments, heavily rely on federal public health data, making them especially vulnerable to federal decision-making.
Rasmussen and several others began archiving CDC webpages and datasets using the Internet Archive (IA). By the 31st of January, site pages and data resources began to disappear.
Some focused on public facing websites, including Rasmussen, data analyst Charles Gaba, and reproductive health writer Jessica Valenti. Many of these websites were guidelines relating to contraception, gender-affirming care, sexual health, and youth health risks. While Gaba captured the entirety of the CDC website (around 7,200 individual HTML pages), the IA remains an important tool to track changes over time through timestamped web captures.
Generally speaking, the IA is a non-profit digital library with millions of written and visual media sources that are freely accessible in the pursuit of “universal access to all knowledge” (Internet Archive, n.d.). The Wayback Machine, for instance, has over 28 years of archived website snapshots and contains 835 billion web pages at the time of writing. In scholarly terms, the IA can be understood in this case as an “inherently political” technology (Winner, 1980, p. 128); handling and hosting information in this open, democratic way begets a social formation in which such acts of resistance can take place. The ethos of the IA in its current form distributes power to its users who can freely archive and access whatever data they choose and when. By using the IA, users enact a world where knowledge is and should be accessible to all.

The IA has already played a role in preserving information across different administrations through their End of Term Web Archive project, which captures U.S. government websites at the end of each presidential term. In the case of the CDC data purge, the archive was also used to host medical datasets. From the 28th to 31st January, Reddit user VeryConciousWater archived every publicly available dataset, with key removals including the Atlas tool (tracking HIV, viral hepatitis, TB, and social determinants of health), the Environmental Justice Index, and the Youth Risk Factor surveillance system (Advisory Committee to the CDC Director, 2025). Several Canadian researchers have spoken about how preserving U.S. data is incredibly important globally due to its historical presence as “the default custodian of large quantities of data that the whole world needs” (Thompson, 2025).
In principle, the changes were made to bring the website into compliance with two executive orders signed within the first 24 hours of inauguration. The most relevant establishes that there are only two genders and requires that so called DEI-language, which “eradicate[s] the biological reality of sex” or “promote[s] gender ideology,” must be removed. Despite being framed as a simple language change, this has enormous implications in medical practice and particular social worlds and identities that are made (in)visible as a result.
In STS terms, classifications are not simply ways of ordering. Rather, they are conscious choices that favour a particular perspective while making others invalid or invisible (Bowker & Star, 1999). Here, establishing that (for instance) only “men” and “women” exist explicitly erases those who do not fit in that category, rendering their identity illegitimate in the eyes of governance and subsequently putting them at risk. For example, removing “DEI language” from Mpox transmission data, such as references to “men who have sex with men” (who are most at risk for Mpox transmission), means that “you’re actually depriving people who are at risk of information they could use to protect themselves” (Belanger, 2025).
These policies, along with more explicit black-letter regulations, fundamentally shape the scientific knowledge we are allowed to have. Forcing the CDC to remove information about such identities means that subsequent research will be (by design) ignorant of these people and their experiences—rife with what Nielsen and Sørensen (2017) call “unknown knowns.”
In this way, the archival of CDC data highlights the use of the IA as an inherently political technology through its role in combatting, I argue, politically-motivated strategic ignorance. The features of this particular technology allowed scientists such as Rasmussen, Gaba, and Valenti to intervene and ensure this crucial information remains stored and accessible.

While there could, in theory, be instances where the IA is appropriated for “non-democratic” uses, I find it extremely difficult to imagine such examples without fundamental changes to the version of the archive I have presented here. The ability for users to access—free of charge—millions of webpages going back almost three decades means that any attempt to centralise power in a single political actor (e.g. an authoritarian government) would require significant changes in the architecture of the IA.
Two weeks after the purge, a federal judge ordered the CDC pages be restored. However, researchers are still shaken by the episode and uncertain about what information was lost. The archives remain, both as archival records and acts of resistance. Since then, projects such as Restored CDC and Gaba’s Archive Index have leveraged and expanded upon the open access features of the IA to continue preserving data and making it navigable to practitioners and the public.
Facing the threat of censorship and wider government upheaval, the IA—an inherently political technology—was used in an active attempt to combat governmental strategic ignorance; as Rasmussen says, “these data are public and they are ours. Deletion disobedience is one way to fight back.”
Note: This post was originally written in April 2025. Censorship has continued since then—22 new sites were removed as of 20th September 2025, including topics in LGBTQ+ care and health equity. In light of a continuing politicisation of the CDC and dismantling of medical expertise in the federal government, the IA remains more important than ever to fighting back.
References
Advisory Committee to the CDC Director. (2025, February 1). Letter to CDC acting director Susan Monarez. https://cdn.arstechnica.net/wp-content/uploads/2025/02/CDC-board-open-letter-2-1-25.pdf
Belanger, A. (2025, February 4). Internet Archive played crucial role in tracking shady CDC data removals. Ars Technica. https://arstechnica.com/tech-policy/2025/02/internet-archive-played-crucial-role-in-tracking-shady-cdc-data-removals/
Bowker, G. C., & Star, S. L. (1999). The Case of Race Classification and Reclassification under Apartheid. In Sorting Things Out: Classification and Its Consequences. The MIT Press. https://doi.org/10.7551/mitpress/6352.001.0001
CDC. (2025, January 31). CDC datasets uploaded before January 28th, 2025. Internet Archive. https://archive.org/details/20250128-cdc-datasets
data.cdc.gov full archive: R/DataHoarder. (n.d.). Reddit. Retrieved 29 April 2025, from https://www.reddit.com/r/DataHoarder/comments/1ife9p1/datacdcgov_full_archive/
Exec. Order No. 14168, 90 FR 8615 (2025). https://www.whitehouse.gov/presidential-actions/2025/01/defending-women-from-gender-ideology-extremism-and-restoring-biological-truth-to-the-federal-government/
Faust, J. (2025a, February 1). BREAKING NEWS: CDC orders mass retraction and revision of submitted research across all science and medicine journals. Banned terms must be scrubbed. [Substack newsletter]. Inside Medicine. https://insidemedicine.substack.com/p/breaking-news-cdc-orders-mass-retraction
Faust, J. (2025b, September 20). BREAKING NEWS: Censorship returns to the CDC. At least 22 websites are down. [Substack newsletter]. Inside Medicine. https://insidemedicine.substack.com/p/breaking-news-censorship-returns
Faust, J. (2025c, November 3). Exclusive: The Trump administration dismantled the CDC’s peer review system. Staffers scrambled to salvage it. [Substack newsletter]. Inside Medicine. https://insidemedicine.substack.com/p/exclusive-the-trump-administration?utm_medium=reader2
Gaba, C. (2025a, February 2). Links to archived versions of every CDC.gov page available pre-purge (Part 1 of 15) [Text]. ACA Signups. https://acasignups.net/25/02/07/links-archived-versions-every-cdcgov-page-available-pre-purge-part-1-15
Gaba, C. (2025b, February 6). CDC.Gov Archive Index [Text]. ACA Signups. https://acasignups.net/cdc-website
Internet Archive. (n.d.). About the Internet Archive. Retrieved 29 April 2025, from https://archive.org/about/
Nielsen, K. H., & Sørensen, M. P. (2017). How to take non-knowledge seriously, or “the unexpected virtue of ignorance”. Public Understanding of Science, 26(3), 385–392. https://doi.org/10.1177/0963662515600967
Rasmussen, A. (2025, February 3). Page 10. Just a few more pages to go. CDC’s website was big. Acasignups.net/25/02/03/lin… [Post]. Bluesky. https://bsky.app/profile/angierasmussen.bsky.social/post/3lhcbwnyd6c24
Restored CDC. (n.d.). Our Mission. Retrieved 7 December 2025, from https://aboutus.restoredcdc.org/
Stone, W. (2025, February 11). Judge orders restoration of federal health websites. NPR. https://www.npr.org/sections/shots-health-news/2025/02/11/nx-s1-5293387/judge-orders-cdc-fda-hhs-websites-restored
Thompson, E. (2025, February 13). Canadian residents are racing to save the data in Trump’s crosshairs. CBC News. https://www.cbc.ca/news/politics/canada-us-medical-environmental-data-1.7457627
Valenti, J. (2025, February 1). Download CDC Guidelines Removed By The Trump Admin [Substack newsletter]. Abortion, Every Day. https://jessica.substack.com/p/cdc-birth-control-guidelines-pdf
Winner, L. (1980). Do Artifacts Have Politics? Daedalus, 109(1), 121–136.
Hannah Schmalstich is a master’s student at the Department of Science and Technology Studies at the University of Vienna. She is also a research assistant for the European Research Council-funded project FutureSpace. She received her bachelor’s degree in Natural Sciences from Durham University in 2024, focusing on physics and philosophy and completing an undergraduate dissertation analysing the social and political contexts surrounding the Oppenheimer security clearance hearing. She is primarily interested in infrastructures and governance in the context of commercial satellite constellations, with the aim to integrate political theory and visual STS in understanding Earth-level user interactions with space infrastructure.













